So, today we saw the orthopedist today and he said that he thought that everything looked good with the kiddo. That was nice to hear for once. He isn't worried about the slight scoliosis that Quentin has, he thinks that we won't have to worry about that until he hits puberty. Also, the fact that he has knock-knees is okay since he isn't walking. He doesn't think that the turn in on his right leg is anything to be concerned about because he is still able to open his legs up without any strain. What does that mean, you say? Well, the doctor is hopeful that he will not have any issues with hip dysplagia (dislocation)...at least in children that are capable of opening their legs in the butterfly position, he has never seen that particular problem. Woo Hoo!
At the appointment they weighed in him in and I was certain that they were going to tell me that he has gained three pounds (he seems heavier every day), but not even an ounce of change. Boo! It seems like we are doing everything and still nothing? My child eats really well, he's not sickly, in fact in spite of his disability, he's actually a pretty healthy kid...but I can't seem to get him to gain the weight that they want and it's driving me crazy. I'm so tired of talking about the "G tube, aka feeding tube". I guess that just means more calorie boosting and trying to find the right combo of food for this guy. I'm really tired of the nutrition appointments and the so-called "feeding clinic" which seems to me like another nutrition appointment. It's really more than I can stand at times, but I go so that they don't think that I'm a bad mom and I listen and then I try and implement what I can when I can so that he stays on track. It's an uphill battle!
I will make sure that I get back in here after Quentin's Neurology appointment at the end of November so that I can keep you all in the loop regarding the seizures. He is still having them and they seem to be a little more intense, so I hope that they can do something soon. Even if it's not physically harming him, I can't stand to see him go through it, it seems so cruel. The nurse was talking about putting him on a medication that we would give him during the seizure to help it subside quicker...let's see!
Until next time; Love to you all!
